Crunch Time for Paralysis Cure@
If you want California spinal cord injury research for cure to move forward, (as is the purpose of Assembly Bill 190, Wieckowski, D-Fremont) there are some Legislative Aides who need to hear from you!
Write to the aide—the member’s name follows. Remember, just a sentence or two is all that is needed! If you want ideas, take a look at the latest I put together, at the bottom. If you only have time to do one, make it the top, aide for the chairman, Felipe Fuentes, and the vice-chair, Diane Harkey
Geoff.email@example.com for chair Felipe Fuentes
Sharon.firstname.lastname@example.org for vice-chair Diane L. Harkey
Camille.email@example.com for Assembleman Steven Bradford
Sandy.firstname.lastname@example.org for Bob Blumenfeld
Mark.email@example.com for Mike Davis
Aaron.firstname.lastname@example.org for Mike Gatto
Darryl.email@example.com for Nora Campos
Tom.firstname.lastname@example.org for Assembly majority leader Charles Calderon
Matt.email@example.com for Donald P. Wagner
Felipe.firstname.lastname@example.org for Isadore Hall
Luis.email@example.com for Ricardo Lara
Danny.firstname.lastname@example.org for Chris Norby
Chris.email@example.com for Jim Nielsen
Kelly.firstname.lastname@example.org for Tim Donnely
Ania.email@example.com for Jose Solorio
Gibran.firstname.lastname@example.org for Jerry Hill
Tiffani.email@example.com for Holly Mitchell
This Friday, your leader will be voting on AB 190 (Wieckowski, D-Fremont) in Appropriations. Here are ten reasons to vote yes—and 47 key groups and supporters.
1. With zero cost to taxpayers, AB 190 will fund California’s highly successful Roman Reed Spinal Cord Injury Research Act of 1999, named after a paralyzed Californian.
2. AB 190 will impose a $3 penalty on all moving traffic violations. As car crash is a major (46%) cause of spinal cord injury, violators should help solve the problem they inflict on others.
4. Operated by the University of California system, the program already has its core lab and headquarters set up at the Reeve-Irvine Research Institute, UC Irvine.
5. California will continue to profit financially. A “money magnet”, the Act attracted $64 million in new revenues from the National Institutes of Health and other out-of-state sources.
6. The biomedical industry, mainstay of the California economy, also benefits; biomed companies (like California Stem Cells, Inc.) spring from successful scientists’ advances.
7. Although “Roman’s Law” funded the first use of President Bush’s approved stem cell lines, leading to Geron’s historic human trials, AB 190 does not focus on stem cells, and has not funded any such research since 2008. Instead, we concentrate on the “everything else” that is needed for cure: including ways to turn on the body’s natural repair engines, and turn off the “inhibitors” of cure; to ease life-threatening blood-pressure changes; diminish the “secondary injury” that often doubles the damage to the spine; build biological “bridges” for new nerves to grow across; to diminish chronic pain, restore bowel and bladder control, and much more.
8. In 175 peer-reviewed publications, Roman’s law has advanced the field of neurology, with “carry-over” impact on other conditions, including ALS (Lou Gehrig’s disease), Spinal Muscular Atrophy, Traumatic Brain Injury, Multiple Sclerosis—indeed, one treatment developed for Spinal Cord Injury is now in human trials for Irritable Bowel Syndrome!
9. Practical applications range from small to staggering: a new Petri dish, (patent pending) which sorts cells by electrical potential; a helmet-glove device to return the power of grip to frozen fingers; robotic “boots” to lower rehabilitation costs; a way to harness brainwaves, so a completely paralyzed person can operate a computer by thought alone; even a new paralysis “model”, humanely designed so a monkey would have just one finger paralyzed.
10. The problem AB 190 addresses is enormous. An estimated 5.6 million Americans suffer paralysis today: California has roughly 650,000 paralyzed individuals. The financial costs are staggering. New paralysis sufferers face bills averaging $775,000 in the first year alone, and are an immense and continual drain on Medi-Cal and Medicare. The agony of individuals and the stress on their families cannot be calculated.
For more information, contact: Jeff Barbosa: (916) 319-2020 Jeff.Barbosa@asm.ca.gov.
ENDORSERS OF AB 190 (in alphabetical order)
Letters of support for AB 190 have poured in from across America and around the world. The men and women who put their good names behind AB 190 read like a Who’s Who of Science. From Paul Berg, winner of the Nobel Prize for DNA research, to Shinya Yamanaka who invented what may be the replacement for embryonic stem cells, those who understand spinal cord injury are backing California.
Please take a moment and glance through this amazing partial list.
- Paul Berg (Nobel Prize winner for DNA research) Stanford University School of Medicine
- Jeffrey A. Bluestone, Executive Vice Chancellor and Provost, UC San Francisco
- Rayilyn Brown, President, Arizona Chapter National Parkinson Foundation
- Nancy Brackett, Ph.D., U of Miami School of Medicine
- Lorraine Chammah, President, Texans for Advancement of Medical Research
- Christopher & Dana Reeve Foundation, Peter T. Wilderotter, President & CEO
- California Healthcare Institute (representing more than 100 biomedical corporations)
- Susan Chandler, Treasurer, California Disability Rights Organization
- Stemcyte, President Calvin Cole
- California Chiropractic Association, Kassie Donoghue, DC, Government Affairs Chair
- W. Dalton Dietrich, Ph.D., Miami Project to Cure Paralysis
- John Dutra, (D-Fremont, retired)Author, Roman Reed Spinal Cord Injury Research Act of 1999
- V. Reggie Edgerton, UCLA Professor, Brain Research Institute
- Brooke Ellison(Christopher Reeve’s last project was directing a movie about Brooke)
- Lucy Fisher and Doug Wick of Red Wagon Films, Sony Pictures
- Jeannie Fontana. CEO SALSa, Inc. Solutions for ALS
- Eric Fingerhut, Chancellor, University System of Ohio
- University of California, Karen French, Associate Director, Legislative Affair
- Leeza Gibbons, Leeza’s Place (Alzheimer’s)
- Lawrence Goldstein, Director, UCSD Stem Cell Program
- Hans Keirstead, Chair, Scientific Advisory Board, California Stem Cell, Inc.
- Stephanie Kolakowsky, Director Rehabilitation Research, Santa Clara Valley Medical Center
- Suzy Kim, Medical Director, Spinal Cord Injury Acute Care UCI Medical Center
- Bob Klein, Founder, Proposition 71, Californians for Stem Cell Research and Cures Initiative
- Dena Ladd, Executive Director, Missouri Coalition for Lifesaving Cures
- Sherry Lansing, winner of the Academy Award Jean Hersholt Humanitarian Award
- Stem Cells Inc., Martin McGlynn, President & CEO
- Karen Miner, Chair, Research for Cure
- Ed Monuki, Associate Professor, UC Irvine (inventor new cell-sorting machine)
- Rania Nasis, General Manager, CA Stem Cell, Inc.
- Richard Patterson, M.D., Santa Clara Valley Medical Center
- Renee A Reijo Pera, Director of Reproductive and Stem Cell Biology Division, Stanford
- Dan Perry, President, CEO, Alliance for Aging Research, Washington, DC
- Claire Pomeroy, Chief Executive Officer, UC Davis Health Department
- Brock Reeve, Executive Director, Harvard Stem Cell Institute
- Bill Remak, Chairman, California Hepatitis Task Force
- Duane Roth, CEO, CONNECT
- Rose Marie Salerno, VA Palo Alto Health Care System
- Lori Sames, Executive Director, Hannah’s Hope Fund
- Bernie Siegel, founder and chair: Stem Cell Action Coalition (72 groups)
- Marilyn Smith, Executive Director, Unite 2 Fight Paralysis
- Michael Sofroniew, Professor, UCLA
- Jim Bennett, Spinal Cord Injury Research Foundation, Rutgers University, New Jersey
- Shinya Yamanaka, Ph.D Director, Center for iPS Cell Research, Kyoto University, Japan
- Texans for Stem Cell Research, David L. Bales, founder
- Fanyi Zheng, Associate Director, Shanghai Stem Cell Institute, Jiao Tong University, China
- Jerry Zucker (movie director, Ghost, Airplane, Naked Gun) Founding member, CURESNOW.